Tag Archives: recovery

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When One Boomer’s Madness Morphs into Dream-Come-True


In 2011, it’s hard to know which is weirder—watching myself on videotape narrating my psychiatric struggle in 1997 or knowing now how inherently different my life is 14 years later.

Though ’97 was difficult, I generally had to fight hard for more than 10 years following my diagnosis with bipolar disorder in 1990, a decade of pain and endurance, as I struggled with every ounce of energy available, battled a diagnosis that doomed me to countless psychiatric hospitalizations and chronic poverty.  I lived without a car and in 1997 on $736 a month.

Things were particularly bleak during the winter and spring of 1997, when I was hospitalized twice and struggled to complete even the most basic tasks of daily living—getting myself to and from treatment, feeding myself regular meals, taking medications as prescribed.  I spent 5 hours a day on Dallas city buses, struggled to purchase groceries on $30 a week, and suffered so with memory loss, I couldn’t remember whether or not I’d taken the Zyprexa (an anti-psychotic drug) that dulled my thinking and left me listless, not to mention sleepy and ravenously hungry.

But yesterday, in the context of a memoir-writing project, I watched video-taped therapy sessions from 1997, a number of them, at least 6 hours worth.

I noted especially that on March 6, 1997, wearing red sweat pants and my hair in a loose bun, I congratulated my therapist on the occasion of her 49th birthday.  I was 35 years old but looked at least 10 years younger than that—thin and toned as I pretzeled myself into a corner of black leather sofa.

what I looked like in 1997

But what I remember about that time, recall without having to watch a video, is the belief that my therapist was rather old—unimaginably older that I could ever imagine myself becoming.

Yet now, in 2011, I am myself 49.  I am the “old” I couldn’t imagine myself becoming.  And this is a hugely strange experience— sitting in a home I own, with my graying hair and gained weight—watching a much younger version of myself, wishing a woman I so respected happy birthday, knowing I was thinking, “Gosh, she’s almost 50.  I can’t imagine being that old.”

watching videos of myself 14 years later

Not only am I watching myself 14 years ago—seemingly endless hours of myself frozen in time—but also I’m thinking about who I am myself now at this ripe old age—how different I look—how inherently reversed my circumstances are—how much better, richer, fuller my life is—how my experience is now what I only hoped it could be then, what I only dreamed it could be, but never expected it could become.

Clichéd as it sounds—I am now literally living a dream come true—a dream I articulated to my therapist in 1997—a dream about teaching at a university again, a dream about writing—a dream about succeeding—a dream about love.

I don’t know how it happened.  I don’t know how or why I became ill, why my mind deteriorated to the point it could no longer be trusted, how it is that now I am well—at least in relative terms—my symptoms well-managed. 

In 1997 Bill Clinton was just beginning his second term as president; scientists were cloning Dolly the sheep; and in the US we would soon have a balanced budget.  Though Princess Diana and Mother Teresa died, it was a time of hope—a time of new beginnings and relative prosperity.

However, my memory at the time was so poor, my connection to the larger world so tenuous, I recall little of this.  I know most of this from my more recent efforts to go back and fill in the blankness my brain experienced as real life.

Now, as I watch these videos, as I reflect on how I felt 14 years ago, on how it feels now to not remember, I’m amazed that I have come this far.  That I no longer fear homelessness, that I no longer live in government housing, that I now own a home, function well, love an amazingly accomplished woman who loves me even more. 

How did I survive more than a decade of seeming defeat?  How is it that I’ve recovered to this degree?  How did this come to be, this tale of endurance, my narrative of hope?  How is it that this stunning grace has happened?

I hope my memoir can help me share this amazing magic—let others know that what sometimes seems an illusion of recovery can indeed become a solid and shared reality—a Boomer’s madness morphed into dream-come-true.

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The Wacky Winter of ’97


I was hospitalized in the winter of 1997.  And from what I can tell about that
time—reading journals, watching video-taped therapy sessions, looking at art—I was unequivocally crazy, insane in every conceivable sense of the word.  Not that I wasn’t exactly that during other hospital stays.  However, during February and March of ’97, my insanity was off the charts.

I’m still trying to understand what happened—still trying to assemble some sense of where I went wrong, what set me off.  And to be honest, I’m not sure I understand any more now than I did before.  I was so insane, none of what I wrote helps me recreate what happened.

I do, however, notice at least two themes I’ve alluded to before—namely my fear of homelessness and my sense that the hospital was home.

I guess this takes me back to the mental health housing series I began a month or so ago but never finished.  The first post in that sequence explores my belief that the hospital was where I belonged, where I felt safe, especially during an inpatient stay during the spring of 1990.  However, that feeling returned during the times I’ve been most ill in subsequent years, as well.  And the winter of 1997 was no exception.

For example, at 8:30 pm on February 2, 1997, three days after being admitted, I wrote:

I want to stay in the hospital for a very long time.  I want this to be my
home . . . .  I’d just prefer to stay here.

I went on to explain that I knew this desire was crazy in and of itself—that it was not normal, nowhere near normal, to want to be locked up in a psychiatric facility.

However, this refrain repeats itself often during the course of my illness—regularly and without fail.  I remember thinking this from time to time, but I hadn’t realized how often I expressed that desire overtly  in the journals I kept.

It’s clear the illness terrified me.  I knew I was sick.  I desperately wanted help and apparently knew on some level that the hospital could keep me safe—not so much from suicide (as I was not often actively suicidal at that time) but from a profound inability to function and  take care of myself.

I’m not sure what precipitated this collapse, though just before this admission, I was obsessed with a fear of homelessness again—seemingly because my social security disability benefits were being reviewed, I feared losing them, and knew I was not able to function well enough to work.  It’s hard to imagine how that fear impacted me, whether that’s what triggered this dizzying psychosis.

However, just two weeks before being admitted and around the time I began to unravel, I made this list—a seeming attempt to survive should I lose my little apartment in east Dallas:

As I review the video-taped therapy sessions, I realize that my therapist repeatedly encouraged me to share my financial struggle with my family—something I refused to do, insisting that the very real possibility that my only remaining parent would respond with indifference to my dilemma, was too
terrifying a risk to take—that my psyche would not be able to tolerate that
degree of rejection, especially since, when I one time needed help purchasing
medication, I had, in fact, met with unwillingness.

So, I don’t know now if that was an accurate perception on my part.  I’d like to think I was wrong.

However, during this same hospitalization I also did a decent amount of what I think is called mirror writing–writing words backwards and forming letters in reverse.

In one instance, I was cognizant enough to make a list of things to tell my friend Georgia–to create a list of items I wanted her to bring me, but crazy enough to compose the whole thing in reversed writing:

In other instances I would begin sentences in the bottom, right-hand corner of the page–writing from right to left, bottom to top, as I did in the ramble about “woods” and “wolves” below:

The three lines at the bottom read:

I will tell that lady the story of my life in the big woods and under the trees where the magic flows.

I truly have no idea why I suddenly began writing in reverse, if perhaps it was paranoia that motivated me–fear that someone might read what I wrote.  I’m baffled by this and have not found any explanations in the literature as to why I might have suddenly done this.  I do know that Leonardo da Vinci wrote all of his personal journals in reverse and that left-handed people are more able to do this than are the right-handed.  I don’t understand brain chemistry well enough to offer a reasonable explanation, and don’t know if something neurological might have been happening.  However, the most obvious explanation remains paranoia, I assume.

I might also surmise that there was something about this particular psychosis that made me obsess about mirrors and write in reverse as part of that obsession, for some of the mirror writing I did was in fact about mirrors–quoting the line from Snow White, “Mirror, mirror on the wall, who’s the fairest one of all:”

I clearly lack the clinical expertise to explain any of this, though it seems my thinking had the bizarre features associated with a fairly severe psychosis.

The fact remains—I lost my mind.  I lost it in a big way

I expect more evidence of this will follow in subsequent posts, as I think I got worse that winter before I got better—so stay tuned for more detailed descriptions of Kathy’s wacky ways in the winter of ’97— ways weirder than this semi-sane version of me might like to admit.

 
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Sanity Sucks (even on a Good Day)!


I’m not nearly  as crazy as I used to be.  Now you could say I’m even semi-sane–though I’m not sure that’s always an advisable way to survive the madness that is image-obsessed, media-driven, fast-food-consuming  middle America.

We may all be better off a little more crazy and a lot less obsessed with success.

However, and this is an over-sized qualifier indeed, my head has never quite figured out how to do sanity full-time.  If only it were 9 to 5 instead of 24/7.  That’s a lot more normal than I’m able to manage–even on a good day.

Too often still, my brain looks like this:


I feel the surreal that is this:

Eclipse
 
I enter the tangle
     of sleep
                    walk
     beside you into the thick
     of camel hair
                    coarse
     and without water
 
the hand, a sudden
     five-pointed mutiny
     against the decay
 
                    a nightmare
of folded sheets
 

So don’t worry if the dishes aren’t done, the laundry looms.  The kids are bound to grow into semi-civilized adults despite your best efforts.

Normal’s not all it’s cracked up to be.  So go a little crazy today.

Do something radical and off the wall:  GIVE YOURSELF A BREAK!

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Dancing the Event Horizon


Blogging a memoir is almost, for sure, slow suicide.  And I swear to God— if it’s not the death of me, it will, at the very least, make me old, make me crazy crazier, make me something I don’t want to be.

graphic by Patrick Spence at http://www.stopthesanity.com

It’s gonna drive me to the brink, beyond that delicate barrier between “then” and “now”—which I guess it’s meant to do—has to do.

But I’ve decided I don’t like to go there—go “then”—peer into the muck and mire of my sometimes depressed, sometimes manic past.

Do these memoirs really help people in the present, anyway?  Do readers really benefit?  Is it really worth the effort?

My partner Sara and I have been discussing these issues over the past several days—discussing my potential book about recovery from bipolar disorder—and this blog, in which I’m testing the waters—tip-toe-ing around the edges of the story, trying not to get my feet wet—

Or so Sara insists.

She says that I’m not trying hard enough—not doing the dirty work of delving deeper than the surface—not forcing myself to swim in darker waters.

And I suppose she’s right. I’m practicing the fine art of avoidance, and this post is a prime example of that maneuver.

So forgive me, folks—

I’m guilty as charged.

I don’t want to deal with the drama that was my past.  I want a story to tell that is less personal, less intimately exhausting—maybe another international assignment for Sara—maybe a story about our efforts to settle again in another crazy place on an equally insane planet—a place different from the madness that was then, from the boredom that is here—that is now.

However, my partner does disaster response—so it’s always tricky wanting work for her—dilly dallying around the edge of dire and all that.  But dire is dramatic.  And sometimes I fear drama feeds my dysfunctional self—as long as it’s not my personal drama—memoir-related—bipolar-driven drama.

However, craving adventure for adventure’s sake is a god-awful motivation—especially when one knows that drama might mean disaster-related misery for someone else.

But maybe it’s not adventure I crave as much as a simple break from memoir—maybe I don’t so much desire drama, as I desire less personal drama.

Whichever it is, I’m far from loving this aspect of myself.

Whether I’m too lazy to do the difficult work of memoir, too weak to relive a painful past, or too in love with the drama-driven life to simply settle for the here and now—none of it is good.  None paints a pretty picture of who I happen to be.

So what I’m wondering is this—

What dysfunction do you like least about yourself?

What behavioral event horizon do you dare dance around or near?

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Writing Round the Vertigo


At the beginning of Mental Health Awareness Month, I posted a piece called “Leaving the Seclusion Room  (some not-so-crazy notes on recoverying from mental illness)” about my stay at an Oklahoma psychiatric facility.  In that post I wrote about the voices I heard—an echo of children’s chatter—a description that prompted a question from my friend Sarah, who asked if I had ever explored those voices poetically—exploited their poetic potential, so to speak.

It turns out, I had.

Sort of.

The poem I’ll share below is written in several voices that interrupt one another—echoing—overlapping—dizzying.  Though there’s only one child’s voice in the mix of layered sing-song, this poem reminds me of the voices I still sometimes hear during times of vertigo-inducing stress–a surreal “reality” that looks a bit like this:

(photo by John Drysdale, " High Living Crocodile," 1976)

So–I hope you’ll wind these stairs with me–

And take a listen—

 

Vertigo

 

My head is killing

     me and he is talking

     about the etiquette

          of date rape

 

     cassette in the player

     cassette in the player

 

          indigo

          girls

          indigo

 

Where have you been?

 

The staircase is winding

     off the edges of the lawn

     and I am here

                                  lavender

 

     lilies of the valley

     lilies

               of

                     the

                             valley

 

I’ve told you not to

     go there

 

     you

     you

 

There you

                     daughter in the photograph

                     age three in front

                     of an antique typewriter

Kathy--already a writer--age 3

Why can’t you be more like . . .

 

    lilies of the valley

     lilies

              of

                    the

                            valley

 

The world according to cats

     is not a crazy sphere

     of influence

                                 spinning

                                 spinning

 

          in my

 

     cassette in the player

     cassette in the player

 

          head

 

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“Brainwashed” for Sanity’s Sake? (Sheltering Crazy in America)


As, I suggested yesterday, mental illness for me meant an ever-evolving sense of place.  It meant, more specifically, my middle class experience of home quickly degenerated, as I found myself in the most secure and restricted units of state-run psychiatric facilities. 

And what was most strange about this already bizarre devolving was the feeling that I belonged there—that I was safe.  I not only felt secure, I felt contained nowhere else, believed I belonged in those narrowed limits of opportunity and options. 

Tell me where to go; tell me when to eat.  I was fine with all of that.  Just don’t make me face a time-is-money world where feelings mattered less than what one earned and the kind of car one drove.  This all drove me to the brink and back, and I wanted to be nowhere near the edge where “me” met world, where folks felt fine that I was on the edge of nowhere and falling off.

At Parkside Hospital in Oklahoma, I wrote about feeling okay with my incarceration, recording on March 19, 1990:

. . . I worry a lot about the outside.  This place feels so safe and secure—except for the fact that my animals are not here.  They’re really the only thing I miss . . . .

I remember that the hospital, ironically, allowed me a feel a glimmer of hope—less like a complete failure, since I didn’t have to face the fact that I couldn’t function—that I couldn’t complete the tasks of daily living.  In the outside world I faced my inadequacies on every front.  Since even brushing my teeth felt like an over-whelming task, I couldn’t manage to do much else, let alone cook or clean.  In the hospital, however, I only had to brush my teeth—nothing else was expected of me.  So I was free to feel success even on these very limited terms.  Once I’d showered or combed my hair, I didn’t then have to face fixing myself something to eat, seeing that the dishes were done, the floor was swept. 

In the hospital’s shelter I could actually luxuriate in having accomplished a shower and change of clothes, since sanity was a huge enough task in and of itself.  I lived moment by less-than-sane moment, reaching for some semblance of sanity—some semblance of safe, if only in the ritual of bathing.  The hospital was where I managed to literally bathe, so that my thinking, as well, could be baptized in the basics of sanity.  Here shelter meant washing (brainwashing even), a sacrament of clean.

 (to be continued)

Note:  We just found out that our 20 foot container from Haiti should be delivered to our home in Lexington on Thursday or Friday.  This could impact my ability to post later in the week, as we will have 66 boxes to unpack in an already full house.

Also, I forgot to mention yesterday that my post “Leaving the Seclusion Room” was published as an op-ed in this past Sunday’s Lexington Herald Leader.  Editors at the paper changed my title and a few sentences here and there, but if you’d like to take a look, click here.

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Blogs Go Ghandi


Blogging is about community.  It’s about sharing and interacting and telling our stories.  It’s about friendship and honesty and all that’s good about people meeting people.  Blogging is about change, about language launched into action.  It’s about hope, about faith, and sometimes even about love.

So it’s happened in the past week, since I’ve been recognizing Mental Health Awareness Month, two bloggers have visited my site, two women who have fabulous and important blogs about mental health that put Ghandi’s imperative into action—they are “the change” many “want to see in the world.”

Sandy Sue’s “A Mind Divided” explores what it means to live with bipolar disorder and uses mixed media art to image its message of hope in the midst of struggle. Just the other day Sandy wrote about the poverty that often accompanies mental illness, about having to choose between meals and medication, since sometimes she can’t afford both.  She rightly suggests that those who say money can’t buy happiness . . .

. . .  aren’t considering those of us who walk to the grocery store when we don’t have enough money to get gas for the car.  Or who simply stay home, because funds for the groceries aren’t there, either.

Reminding us that “in all the ways that matter, money does buy happiness,” Sandy focuses a light on an ugly underside of mental illness, the poverty that often prevents patients, no longer able to work, from getting the medications they need and sometimes even food to eat.

However, “Suicide Ripple” delivers an even more sobering message—that, indeed, some don’t live long enough to go without medication or become hungry, because a hard, cold fact remains: mental illness kills.  Begun by the friend of a bipolar-diagnosed woman, who committed suicide in January of this year, “Suicide Ripple” is about

the effects such a suicide has on a family, a community, even people who didn’t know the person who completed suicide. This one act by one individual causes a ripple effect that can reach hundreds of people all over the country, even the world.

 The writer hopes her blog will prevent others from ending their lives, showing the impact such deaths have on loved ones left behind, as well as comfort the survivors themselves, creating a community of support.

The bottom line is this—social media has massive impact, affects the way we think about ourselves and the communities we’re part of.  As such, blogs should be used to lessen isolation, loneliness, depression and despair.  If blogging can create the very thing so many suicide victims lack, the very thing that drives them to end their lives and hurt the ones they love, if blogs can build community, create caring environments where sharing can be safely and anonymously undertaken, then  more mental health professions should exploit this potential, and many more who live with mental illness should tell their stories, talk about their struggles, share the hope and joy, peace and comfort that come with recovery.

May more of us use our blogs to affect change.  As Ghandi so wisely advised, “Be the change you want to see in the world.”