Tag Archives: memoir

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Linoleum Floors are More Than They’re Cracked up to Be


I heard someone say the other day that home is where your story begins.  It’s where we’re rooted, what grounds us in the present and gives us a history to remember.

I’ve been fascinated for years by the notion of place and the impact it has on who we become.  I’ve even oriented my composition classes around questions of space and place, exploring how who we are is so often affected by where we come from.

So it seems unsurprising then that I might orient my memoir about recovering from mental illness around similar concepts.  I’ve posted pieces about fearing homelessness, about my inability to afford housing in any remotely comfortable way, about wanting the hospital to be my home.  I even took this one step further yesterday when I mentioned now owning a home.             

However, an important part of this progression toward home ownership involved twice living in government housing—not a lovely place by any means—but not the housing horror folks often expect.

In June of 1998, I moved into Lakeland Manor—a government-subsidized, semi-high-rise for the elderly and disabled in Dallas, Texas.  I decided this move made sense when it became more and more difficult to afford the small, one bedroom apartment I leased on Northwest Highway.  I scraped and scavenged each month to pay the rent, making myself abide by outrageously restricted spending limits that may have reinforced patterns of neglect and denial I carried over from childhood.  The apartment at Lakeland Manor saved me more than $200 a month—what to me amounted to a small fortunate at the time.  The year before, I had told my therapist that if I could only make $100 more a month, I would feel rich.

I’d gotten to know a woman who owned a home in a neighborhood near the complex, and visiting her home, I’d noticed the place was not-so-bad.  In fact, my friendship with Jeanette impacted my decision to move, as I began to recognize the impact proximity might have on my recovery.

The Dallas-Fort Worth Metroplex is not a small place.  My apartment was far from my therapist’s office in Plano—an expensive place to live, and I knew how not having a car kept me isolated, if I didn’t have friends nearby.  I had been fortunate to have my friend Ellen living in the complex on Northwest Highway.

I frankly adored Ellen.  She was my friend from Tulsa, my first openly lesbian friend, one who had also moved to Dallas for treatment purposes.  Ellen was witty, brilliant, creative—great fun to be around when she was sober or not psychotic.  Unfortunately Ellen’s efforts toward sobriety left her more psychotic, more often, and in some ways less available.

My move from Northwest Highway to Lakeland Manor had no conscious connection to Ellen’s decline, but tragically Ellen died suddenly shortly after my move, having visited my new apartment on only one occasion.  Ellen’s death devastated me.  There seemed no clear medical explanation for her dropping dead one afternoon in the parking lot of the apartment complex where we had lived.  But once Ellen was gone, I was relieved to have already moved.  I don’t imagine I could have tolerated living there with her gone.

This issue of proximity made one friend I met at Lakeland Manor enormously important, as I finally had a friend who was bright and creative living in the same building.  Elaine was a classical musician who played the French horn—an SMU grad who loved to laugh as much as I did.  Elaine had had a stroke a number of years back, as well as a kidney transplant, so her physical disability qualified her to live in the building.

Elaine was a friend in every sense of the word.  She was my age, came from a similar educational background, and was finally someone with whom I could socialize, without either transportation or finances being issues.

Except for Ellen, when I lived on Northwest Highway, none of my friends lived nearby.  Without transportation in a city like Dallas—especially when you don’t live in a particularly safe part of town—it’s logistically difficult to go out with friends after dark.  And given all the other battles I was fighting at the time, dealing with getting home after dark was more than I could manage—so mostly I stayed home.

However, I couldn’t afford to socialize either.  I couldn’t afford movies or going out to eat or shopping—activities most folks not fighting poverty enjoy.  This created a financial incongruity in almost every relationship—leaving me feeling isolated and alone. 

With Elaine, all of this changed.  Neither of us had any money—neither of us could afford to go out—but there were countless evenings when Elaine would come down to my apartment or I would go up to hers, so we could cook dinner together and watch T.V.  The meals were simple.  We ate lots of pasta. 

dinner with Elaine at my apartment, February 1999

I remember we spent Christmas of 1998 together.  It was icy outside.  We couldn’t go anywhere, but that didn’t matter.  We were friends, and we were together.  Ironically, I owed this friendship and the joy it provided to the fine folks at the Dallas Housing Authority.

So Lakeland Manor, government housing or not, was in many ways a relief to me, my apartment a retreat—a place I could finally comfortably afford.  Plus, since the rent was based on income, I never really needed to fear homelessness again. 

Home is where ones story begins, and the home I made at Lakeland Manor is one that ultimately allowed my recovery to take hold—grow roots—be strengthened.  I gained confidence while living there.  I felt good about myself and proud.

Yes, my apartment had roaches.  It has linoleum tile on the floor.  It was ugly. 

less-than-lovely linoleum floor

But I worked hard to make it feel like home, and quite honestly I loved it, linoleum and all.

So, home is where one’s story begins, humble as that home may be.

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When One Boomer’s Madness Morphs into Dream-Come-True


In 2011, it’s hard to know which is weirder—watching myself on videotape narrating my psychiatric struggle in 1997 or knowing now how inherently different my life is 14 years later.

Though ’97 was difficult, I generally had to fight hard for more than 10 years following my diagnosis with bipolar disorder in 1990, a decade of pain and endurance, as I struggled with every ounce of energy available, battled a diagnosis that doomed me to countless psychiatric hospitalizations and chronic poverty.  I lived without a car and in 1997 on $736 a month.

Things were particularly bleak during the winter and spring of 1997, when I was hospitalized twice and struggled to complete even the most basic tasks of daily living—getting myself to and from treatment, feeding myself regular meals, taking medications as prescribed.  I spent 5 hours a day on Dallas city buses, struggled to purchase groceries on $30 a week, and suffered so with memory loss, I couldn’t remember whether or not I’d taken the Zyprexa (an anti-psychotic drug) that dulled my thinking and left me listless, not to mention sleepy and ravenously hungry.

But yesterday, in the context of a memoir-writing project, I watched video-taped therapy sessions from 1997, a number of them, at least 6 hours worth.

I noted especially that on March 6, 1997, wearing red sweat pants and my hair in a loose bun, I congratulated my therapist on the occasion of her 49th birthday.  I was 35 years old but looked at least 10 years younger than that—thin and toned as I pretzeled myself into a corner of black leather sofa.

what I looked like in 1997

But what I remember about that time, recall without having to watch a video, is the belief that my therapist was rather old—unimaginably older that I could ever imagine myself becoming.

Yet now, in 2011, I am myself 49.  I am the “old” I couldn’t imagine myself becoming.  And this is a hugely strange experience— sitting in a home I own, with my graying hair and gained weight—watching a much younger version of myself, wishing a woman I so respected happy birthday, knowing I was thinking, “Gosh, she’s almost 50.  I can’t imagine being that old.”

watching videos of myself 14 years later

Not only am I watching myself 14 years ago—seemingly endless hours of myself frozen in time—but also I’m thinking about who I am myself now at this ripe old age—how different I look—how inherently reversed my circumstances are—how much better, richer, fuller my life is—how my experience is now what I only hoped it could be then, what I only dreamed it could be, but never expected it could become.

Clichéd as it sounds—I am now literally living a dream come true—a dream I articulated to my therapist in 1997—a dream about teaching at a university again, a dream about writing—a dream about succeeding—a dream about love.

I don’t know how it happened.  I don’t know how or why I became ill, why my mind deteriorated to the point it could no longer be trusted, how it is that now I am well—at least in relative terms—my symptoms well-managed. 

In 1997 Bill Clinton was just beginning his second term as president; scientists were cloning Dolly the sheep; and in the US we would soon have a balanced budget.  Though Princess Diana and Mother Teresa died, it was a time of hope—a time of new beginnings and relative prosperity.

However, my memory at the time was so poor, my connection to the larger world so tenuous, I recall little of this.  I know most of this from my more recent efforts to go back and fill in the blankness my brain experienced as real life.

Now, as I watch these videos, as I reflect on how I felt 14 years ago, on how it feels now to not remember, I’m amazed that I have come this far.  That I no longer fear homelessness, that I no longer live in government housing, that I now own a home, function well, love an amazingly accomplished woman who loves me even more. 

How did I survive more than a decade of seeming defeat?  How is it that I’ve recovered to this degree?  How did this come to be, this tale of endurance, my narrative of hope?  How is it that this stunning grace has happened?

I hope my memoir can help me share this amazing magic—let others know that what sometimes seems an illusion of recovery can indeed become a solid and shared reality—a Boomer’s madness morphed into dream-come-true.

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The Wacky Winter of ’97


I was hospitalized in the winter of 1997.  And from what I can tell about that
time—reading journals, watching video-taped therapy sessions, looking at art—I was unequivocally crazy, insane in every conceivable sense of the word.  Not that I wasn’t exactly that during other hospital stays.  However, during February and March of ’97, my insanity was off the charts.

I’m still trying to understand what happened—still trying to assemble some sense of where I went wrong, what set me off.  And to be honest, I’m not sure I understand any more now than I did before.  I was so insane, none of what I wrote helps me recreate what happened.

I do, however, notice at least two themes I’ve alluded to before—namely my fear of homelessness and my sense that the hospital was home.

I guess this takes me back to the mental health housing series I began a month or so ago but never finished.  The first post in that sequence explores my belief that the hospital was where I belonged, where I felt safe, especially during an inpatient stay during the spring of 1990.  However, that feeling returned during the times I’ve been most ill in subsequent years, as well.  And the winter of 1997 was no exception.

For example, at 8:30 pm on February 2, 1997, three days after being admitted, I wrote:

I want to stay in the hospital for a very long time.  I want this to be my
home . . . .  I’d just prefer to stay here.

I went on to explain that I knew this desire was crazy in and of itself—that it was not normal, nowhere near normal, to want to be locked up in a psychiatric facility.

However, this refrain repeats itself often during the course of my illness—regularly and without fail.  I remember thinking this from time to time, but I hadn’t realized how often I expressed that desire overtly  in the journals I kept.

It’s clear the illness terrified me.  I knew I was sick.  I desperately wanted help and apparently knew on some level that the hospital could keep me safe—not so much from suicide (as I was not often actively suicidal at that time) but from a profound inability to function and  take care of myself.

I’m not sure what precipitated this collapse, though just before this admission, I was obsessed with a fear of homelessness again—seemingly because my social security disability benefits were being reviewed, I feared losing them, and knew I was not able to function well enough to work.  It’s hard to imagine how that fear impacted me, whether that’s what triggered this dizzying psychosis.

However, just two weeks before being admitted and around the time I began to unravel, I made this list—a seeming attempt to survive should I lose my little apartment in east Dallas:

As I review the video-taped therapy sessions, I realize that my therapist repeatedly encouraged me to share my financial struggle with my family—something I refused to do, insisting that the very real possibility that my only remaining parent would respond with indifference to my dilemma, was too
terrifying a risk to take—that my psyche would not be able to tolerate that
degree of rejection, especially since, when I one time needed help purchasing
medication, I had, in fact, met with unwillingness.

So, I don’t know now if that was an accurate perception on my part.  I’d like to think I was wrong.

However, during this same hospitalization I also did a decent amount of what I think is called mirror writing–writing words backwards and forming letters in reverse.

In one instance, I was cognizant enough to make a list of things to tell my friend Georgia–to create a list of items I wanted her to bring me, but crazy enough to compose the whole thing in reversed writing:

In other instances I would begin sentences in the bottom, right-hand corner of the page–writing from right to left, bottom to top, as I did in the ramble about “woods” and “wolves” below:

The three lines at the bottom read:

I will tell that lady the story of my life in the big woods and under the trees where the magic flows.

I truly have no idea why I suddenly began writing in reverse, if perhaps it was paranoia that motivated me–fear that someone might read what I wrote.  I’m baffled by this and have not found any explanations in the literature as to why I might have suddenly done this.  I do know that Leonardo da Vinci wrote all of his personal journals in reverse and that left-handed people are more able to do this than are the right-handed.  I don’t understand brain chemistry well enough to offer a reasonable explanation, and don’t know if something neurological might have been happening.  However, the most obvious explanation remains paranoia, I assume.

I might also surmise that there was something about this particular psychosis that made me obsess about mirrors and write in reverse as part of that obsession, for some of the mirror writing I did was in fact about mirrors–quoting the line from Snow White, “Mirror, mirror on the wall, who’s the fairest one of all:”

I clearly lack the clinical expertise to explain any of this, though it seems my thinking had the bizarre features associated with a fairly severe psychosis.

The fact remains—I lost my mind.  I lost it in a big way

I expect more evidence of this will follow in subsequent posts, as I think I got worse that winter before I got better—so stay tuned for more detailed descriptions of Kathy’s wacky ways in the winter of ’97— ways weirder than this semi-sane version of me might like to admit.

 
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Dancing the Event Horizon


Blogging a memoir is almost, for sure, slow suicide.  And I swear to God— if it’s not the death of me, it will, at the very least, make me old, make me crazy crazier, make me something I don’t want to be.

graphic by Patrick Spence at http://www.stopthesanity.com

It’s gonna drive me to the brink, beyond that delicate barrier between “then” and “now”—which I guess it’s meant to do—has to do.

But I’ve decided I don’t like to go there—go “then”—peer into the muck and mire of my sometimes depressed, sometimes manic past.

Do these memoirs really help people in the present, anyway?  Do readers really benefit?  Is it really worth the effort?

My partner Sara and I have been discussing these issues over the past several days—discussing my potential book about recovery from bipolar disorder—and this blog, in which I’m testing the waters—tip-toe-ing around the edges of the story, trying not to get my feet wet—

Or so Sara insists.

She says that I’m not trying hard enough—not doing the dirty work of delving deeper than the surface—not forcing myself to swim in darker waters.

And I suppose she’s right. I’m practicing the fine art of avoidance, and this post is a prime example of that maneuver.

So forgive me, folks—

I’m guilty as charged.

I don’t want to deal with the drama that was my past.  I want a story to tell that is less personal, less intimately exhausting—maybe another international assignment for Sara—maybe a story about our efforts to settle again in another crazy place on an equally insane planet—a place different from the madness that was then, from the boredom that is here—that is now.

However, my partner does disaster response—so it’s always tricky wanting work for her—dilly dallying around the edge of dire and all that.  But dire is dramatic.  And sometimes I fear drama feeds my dysfunctional self—as long as it’s not my personal drama—memoir-related—bipolar-driven drama.

However, craving adventure for adventure’s sake is a god-awful motivation—especially when one knows that drama might mean disaster-related misery for someone else.

But maybe it’s not adventure I crave as much as a simple break from memoir—maybe I don’t so much desire drama, as I desire less personal drama.

Whichever it is, I’m far from loving this aspect of myself.

Whether I’m too lazy to do the difficult work of memoir, too weak to relive a painful past, or too in love with the drama-driven life to simply settle for the here and now—none of it is good.  None paints a pretty picture of who I happen to be.

So what I’m wondering is this—

What dysfunction do you like least about yourself?

What behavioral event horizon do you dare dance around or near?

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It’s the DNA, Stupid!


(in memory of my father who died May 13, 1981)

I never knew my paternal grandfather.  Sure, he died before I was born, but my father never knew him either, as least not in any meaningful way, after infancy, when my grandparents separated.

Ultimately, their ugly divorce left my siblings and I knowing nothing about the McCullough family, whose name and DNA we share.

For years I searched for information about my grandfather, as I’d been told he was a sports’ columnist for the Pittsburgh Post Gazette, perhaps the person from whom I’d inherited the urge to write.

Never finding anything meaningful, I searched, as well, for my great-grandfather, William Tice McCullough—for whom both my father and brother were named.

my father, who died in 1981

my brother

I found nothing.

Until Monday—

When I received an email response to an Ancestry.com inquiry I made in 2005:

William Tice McCullough was born in California, Ohio in 1873 and married a woman named Minnie from Pittsburgh born in 1875.  He is the grandfather of David McCullough, the historian, by one son and Nancy McCullough Griggs, who is being buried today in the North Cornwall cemetary, Cornwall CT, a grandchild by another son.

It turns out that William Tice McCullough had several sons, three of whom were Mark McCullough, father of Nancy McCullough Griggs, buried this week in Connecticut, Christian Hax McCullough, father of historian David McCullough, and Horace George McCullough, my father’s father.

As a writer, what interests me the most, assuming I received accurate information, is that my father was the first cousin of David McCullough, a two time Pulitzer Prize winner.

David McCullough

So, maybe there are some writerly genes in McCullough DNA.

Maybe there’s hope for my memoir after all.

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Asylum Seekers (Another Chapter in the Chronicle of Crazy)


Note: This piece continues the story of my psychiatric hospitalization in the spring 1990 (begun two posts back).  To read part 1 of this sequence, “Another Chapter in the Chronicle of Crazy,” click here.  To read part 2, “Forgetting the Seclusion Room ,” click here.  Part 2 concludes with the following sentence:

But mostly I walked that hospital hall alone, alternately fighting and forgetting a psychosis that whiplashed between extremes of nothingness and nowhere . . . .

. . . . This whiplashing made me acutely aware of my own nothingness, the fact that at the center of myself a huge hole swallowed and indeed devoured all I thought I knew about myself and the world around me.

I was nothing.

The world around me a vacuum—nothing but emptiness sucking.

Suddenly my experience of myself shifted.  I was not who I thought I was.   

I was nobody.

I was nowhere.

I saw myself stripped of all seeming substance, of all that seemed solid and predictable in the face of free-fall.  I was naked and drowning—bare to the glare of what others called crazy.

If I was indeed, out of touch with reality, as the doctors told me, what did that mean?  And if I couldn’t trust my own mind, what could I trust? 

Inevitably, this possibility that I couldn’t or shouldn’t trust myself terrified me.  And my mind, though insane, was adaptive enough to not consciously fear itself.  Instead, I displaced this terror in all directions, becoming terrified of everything—terrified of nothing.   I couldn’t articulate at the time exactly what I feared.  I was only and always overcome with dread.  I knew something was terribly wrong.

As I look back on it now, I imagine I wanted out.  But not so much out of the hospital, as out my own mind, a mind that, if insane, was no longer an asylum in its own right.

As Anne Sexton said:

O mother of the womb
did I come here for blood alone?
O little mother,
I am in my own mind,
I am locked in the wrong house.  (“For the Year of the Insane”)
 

So in the end, it was terror that made me walk that hospital hall alone–alone in the most existential sense–exiled not only from the rest of the world by mental illness, but exiled by mental illness from myself.

This is the terror of mental illness–terror from which we seek the ultimate asylum–an asylum that ends stigma, increases awareness, guarantees hope for all who suffer.

Ultimately, this is what it means to “reinvent the event horizon”–to bring back from the brink all who suffer, all who are marginalized by any stigma, especially the stigma that is mental illness.

__________________________________________________

Since May 1st marks the beginning of Mental Health Awareness Month, I will republish this entire 3 post sequence as one on Monday, May 2nd, along with art that illustrates my journey.   In an effort to raise awareness and erase stigma, please share these posts with those you love sometime over the next month.

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Forgetting the Seclusion Room (Another Chapter in the Chronicle of Crazy)


(To read the post that precedes this, click here.)

I don’t remember arriving at Parkside Hospital, a psychiatric facility in Tulsa, Oklahoma; neither do I recall anything about the admissions process.  I don’t remember how my Maltese Lizzy came to be kenneled at the vet’s office, who took me to the hospital or if it’s possible I even drove myself.

Indeed, it’s these gaps in memory that I remember most. And this fact of forgetting remains my ongoing issue with memoir.  How does one memoir without memory?  How does one write the empty space where the story should be?

These gaps complicate the writing process, and the effort to fill in the details, to flesh out the facts, force me to depend on journals I kept at the time.  For example, the night I so unceremoniously removed the carpet from my living room, the night before the hospital admission I allude to above, I described an intense sense of alienation and confusion:

I know that other people must not experience the world in the way I do, because if they did, the world would be a very different place and I wouldn’t feel so strange—so marginal—so near the edge and falling off.  I have a kind of hyper-consciousness that nearly drives me crazy.  I feel driven.  I feel haunted.  I feel so alone in my experience . . . . I feel out of control and at the mercy of my own mind . . . . I’m so alone and so afraid . . . . I feel like a bad human being—like I’m just not good at it.  I feel like a failure.

I can’t control my thoughts.  I think thoughts I don’t want to think.  I feel out of control.

I feel like I can’t be true to myself and live in this world, like I want to wear bones on my clothes—on the outside pinned to me.

I don’t remember anything about this bizarre urge to “wear bones,” but skeletal fashion statement aside, I also don’t recall the particulars of this admission to Parkside in March of 1990.  However, by the time I left Tulsa in 1995, I had been admitted to this same facility any number of times and do recall a few facts about the place.

The building had three floors, for example, and a basement—the first an intake unit and small lobby, the second a locked but moderately restricted unit, and the third a locked but highly restricted one.

I was admitted to the third floor.  I remember a day room at one end, 4 dormitory style rooms at the other, and a hallway connecting the two. The hall had a nurses’ station along one wall, an elevator on the other. 

With windows along two walls, the day room was large, filled with square wooden tables with white Formica tops, four chairs at each.  We patients spent most of our time in this open space: played games, watched television, ate meals. 

The patient rooms were bare and barrack-like.  With a partition down the middle, two beds on one side, two on the other, each room also contained two desks and four small wardrobes.  Bathrooms, one per room, boasted, a toilet and shower stall, not to mention a metal mirror above each sink—no glass allowed, lest patients break it and purposefully injure themselves.

Behind the nurse’s station was another hall that was locked and off-limits to patients.  Here were a number of seclusion rooms, each with a single bed bolted to the floor in the center of the space—each equipped with 4 point restraints—wide leather cuffs that strapped wrists and ankles to the bed.   I spent time alone in these rooms when I was particularly distressed, but only once in 4 point restraints. 

I walked the hall between these dorms and day room, repeatedly, regularly.  The antipsychotic medication made me restless, so I paced, feeling the walls with my palms, an effort to comfort myself, to calm the cacophony of crazy that worsened every evening. 

One nurse was kind and would sometimes walk with me, attempting to reassure me, to lessen the aloneness, to quiet the chatter in my head, the echo of children’s voices saying senseless, sing-song rhymes.

But mostly I walked that hall alone, alternately fighting and forgetting a psychosis that whiplashed between extremes of nothingness and nowhere.

(to be continued)